The National Cancer Screening Register
What is the role of the National Cancer Screening Register?
The National Cancer Screening Register (NCSR) supports the operations of the National Cervical Screening Program (NCSP) by providing a secure, confidential database of screening records.
Starting in mid-2018, the NCSR will invite women aged 25-74 to have a Cervical Screening Test (the Pap test replacement*) when they are due. This new Register has replaced the Pap test registers within states and territories, providing a national database of screening records for cervical screening.
The NCSR will also support the National Bowel Cancer Screening Program, meaning that each person who participates in both cervical and bowel cancer screening will have a single record.
What information is collected by the NCSR?
The NCSR collects the results of your Cervical Screening Test (or Pap test) and the results of any follow up tests or investigations after your screening test.
The information collected includes:
- Your name, address and date of birth,
- Details of the health practitioner who performed your test
- The date of the test and the name of the laboratory that processed it; and
- The results of the test
It’s important to keep your details up-to-date so the NCSR can remind you when you are due for your Cervical Screening Test.
Are my details kept confidential?
Yes, your information will always be kept confidential. Information collected by the NCSR is protected by legislation and its main purpose is to help people participate in cervical and bowel screening when they are due.
The national and state programs monitor participation and outcomes from screening, but they only look at data at a population level; this means that no individuals can be identified.
Sometimes, researchers may request information for research projects. Any data provided to them does not identify individuals and is only given when they have formal ethics approval, which has strict rules about how they use the data.
The NCSR will ensure your information is only disclosed to you or:
- your health professional
- the laboratory that processed your test
This is in accordance with the National Cancer Screening Register Act 2016.