About NSW Prostate Clinical Cancer Register

Prostate cancer is the most common cancer diagnosed in Australian men and is most prevalent in men aged 70 years and over. A third of all cases of prostate cancer are diagnosed in NSW.

The number of men diagnosed with prostate cancer is growing and is thought to be due to early screening, increased detection and the ageing population.

The aims of the NSW PCCR are to:

  • assess patterns of care
  • reduce variation in treatments and outcomes
  • improve compliance with best practice-based guidelines for the treatment of prostate cancer
  • provide information to assist in the credentialing of clinicians and identification of appropriate training resources
  • identify factors that predict favourable and unfavourable treatment outcomes, particularly in relation to the major adverse effects
  • provide information to patients about the risks and benefits of specific approaches to prostate cancer treatment
  • support research into prostate cancer at a population level.

How does the NSW PCCR work?

Cancer is a notifiable disease in NSW and all diagnosed cases are reported by mandate to the NSW Cancer Registry (NSWCR).

Men who are diagnosed with prostate cancer on or after January 1, 2015 will be identified via the NSWCR for inclusion in the NSW PCCR and eligibility will be confirmed against records in participating hospitals and clinicians rooms.

The Registry will write to eligible men and invite them to participate. All men will receive a Participant Information Pack in the post. The Participant Information Pack will contain:

  • an invitation letter
  • information sheet outlining what participation will involve
  • important information on how men can opt out if they do not want to be included on the registry.

The NSW PCCR is an opt-out registry. The opt-out approach is a method by which information regarding a research project is provided to potential participants and their participation is assumed unless they take action to decline to participate. This approach is widespread in 'low-risk' population health research both within Australia and Internationally and is approved by the National Health and Medical Research Council (NHMRC). For further information please visit the NHMRC website.

Flow diagram of participation in the registry.

Contact Us

NSW PCCR Hotline (toll-free):

1800 992 028

Monday-Friday: 8:30am - 4:30pm EST (Eastern Standard Time)

Excludes NSW Public Holidays

NSW PCCR Email:

nswpccr@cancerinstitute.org.au

The Prostate Cancer Outcomes Registry Australia and New Zealand has the support and involvement of key figures in cancer research, cancer treatment and epidemiology in the state and country.

Other jurisdictions participating in the Prostate Cancer Outcomes Registry Australia and New Zealand initiative are:

We gratefully acknowledge the funding provided by the Movember Foundation and the support of Monash University in establishing the NSW PCCR. 

The NSW PCCR is supported by:

NSW Agency for Clinical Innovation

Cancer Trials Group Limited

Urological Society of Australia

Prostate Cancer Foundation of Australia

Prostate Cancer Outcomes - Registry Australia and New Zealand

MOGA

Royal Australian and New Zealand College of Radiologists

Faculty of Radiation Oncology Gentio-Urinary Group (FROGG)

RCPA