Governance and steering committee
Data within the NSW PCCR will be identifiable. This information is confidential and will only be accessible by authorised personnel.
The database is housed and managed in an ISO 27001 certified environment. The ISO 27001 certification incorporates the Privacy Act (1988) and Health Records Act (2001) within its Applicability Statement.
Identifying data will not be released to any third party. Only aggregate data will be published, to ensure the confidentiality of hospitals, clinicians, patients and jurisdictions.
The NSW Population and Health Services Research Ethics Committee (Lead Committee) have provided full ethical approval for the establishment of this registry in NSW.
NSW PCCR Steering Committee
This Steering Committee governs all activities of the NSW PCCR.
Adjunct Associate Professor Andrew Brooks (Chair) - Lead Clinician
A/Prof Brooks is the Head of the Department of Urology for the Western Sydney Local Health District and also holds appointments at Westmead Private Hospital and Macquarie University Hospital in addition to his academic appointment at the University of Sydney. (Show more)
Shelley Rushton - Lead Investigator
Originally from New Zealand, Shelley Rushton moved to England to study at the Royal Marsden Hospital specialising in oncology nursing with further work in the areas of bone marrow transplants and palliative care.
Shelley has worked at the Cancer Institute NSW since 2004, setting up the eviQ website, and has been in the role of Director Cancer Services and Information since 2015. (Show more)
Professor Manish Patel
Professor Patel is a urological cancer surgeon with a speciality interest in prostate cancer. He has a urological cancer fellowship from the Memorial Sloan-Kettering Cancer Centre in New York in addition to a fellowship from the Society of Urologic Oncologists, USA. (Show more)
Dr David Malouf
Dr Malouf is the immediate past president of the Urological Society of Australia and New Zealand and the past chair of the Australian and New Zealand Association of Urological Surgeons.
He is currently the Chair of the Awareness and Education Committee of the Prostate Cancer Foundation of Australia. (Show more)
Professor Henry Woo
Henry Woo is a urological surgeon sub-specialised in the management and treatment of prostate cancer and benign prostate disease. He is a Professor of Surgery at the Sydney Adventist Clinical School of the University of Sydney.
He is the Editor in Chief of BJUI Knowledge, an innovative on-line CME portal developed by the BJUI. (Show more)
Dr Mark Louie-Johnsun
Dr Mark Louie-Johnsun is a Urological Surgeon qualified under the Royal Australasian College of Surgeons (RACS) based on the Central Coast, NSW since 2009. He initially graduated with Honours from the University of New South Wales.
He has a subspecialty interest in advanced minimally invasive (keyhole / laparoscopic) surgical techniques particularly for kidney and prostate cancer. (Show more)
Professor Warick Delprado
Prof Delprado is the Director of Histopathology at Douglas Hanly Moir and holds academic appointments at the University of Notre Dame and Macquarie University.
His special areas of interest include genitourinary pathology and cytopathology. He has published many articles, mainly in the fields of genitourinary and gynaecological pathology. (Show more)
Associate Professor Andrew Kneebone
A/Professor Andrew Kneebone is a senior staff specialist in radiation oncology at the Royal North Shore and Gosford Hospitals as well as Genesis Cancer Care. He has nearly 20 years of experience as a prostate cancer specialist and is current co-chair of the national Radiation Oncology Genitourinary executive, is on the National Board for the Prostate Cancer Foundation of Australia and has been an author on multiple National guidelines for definitive and post prostatectomy radiotherapy. (Show more)
Dr Tania Moujaber
Dr Tania Moujaber is a Staff Specialist Medical Oncologist at the Crown Princess Mary Cancer Centre, Westmead and Blacktown hospitals and subspecialises in the management of genito-urinary malignancies, including prostate cancer. She holds an academic appointment with the University of Sydney and is active in clinical and translational research, including in prostate cancer clinical trials. (Show more)
Dr Elizabeth Hovey
Dr Hovey is a Senior Staff Specialist in Medical Oncology at Prince of Wales Hospital, Conjoint Senior Lecturer at UNSW and Honorary Associate of the University of Sydney. Dr Hovey’s main areas of expertise and research interest are genitourinary oncology and neuro-oncology.ogy. (Show more)
Associate Professor David Smith
A/Prof David Smith is a Research Fellow and cancer epidemiologist at the Cancer Council NSW. He has a particular focus on prostate cancer, prostate cancer testing and prostate cancer outcomes in Australia. A/Prof Smith works in the Health Services Research Program of the Cancer Research Division. (Show more)
Mr Tony Maxwell
Tony has been battling advanced prostate cancer since 2003. Following his diagnosis he joined the Westmead Prostate Cancer Support Group and has since become actively involved in a variety of prostate cancer support groups, networks and committees at state and national levels. (Show more)
Dr Claire Cooke-Yarborough
Dr Cooke-Yarborough graduated from UNSW in 1986 with an MBBS (Hons). She is qualified as an Anatomical Pathologist and was admitted as a Fellow of the Royal College of Pathologists of Australasia in 1994. (Show more)
Dr Grant Sara
Dr Grant Sara is the Director of InforMH, the unit responsible for data collection, analysis and reporting for NSW Mental Health and Drug and Alcohol Services. (Show more)
Dr Carolyn Mazariego-Jones
Dr Carolyn Mazariego-Jones is a cancer survivorship researcher who uses behavioural research and implementation science to understand and improve quality of life and psychosocial aspects of cancer care. Her recent research examined the long-term survivorship outcomes of men with prostate cancer in the largest longitudinal cohort study in Australia, The Prostate Cancer Care and Outcomes Study.
Brett is director of a boutique and privately-owned Financial Planning practice.Having had a prostate cancer diagnosis and subsequent surgery, he understands personally some of the issues facing men and the special challenges when they are still running a business. (Show more)
Professor Phillip Stricker AO
Professor Phillip Stricker is Chairman of the Urology Department at St Vincent’s Campus Sydney, the Director of the St Vincent’s Prostate Cancer Centre Sydney, Professor at UTS & UWS, Conjoint Associate Professor in Surgery at the University of New South Wales and Sydney University, Director of the Australian Prostate Cancer Research Centre – NSW at The Kinghorn Cancer Centre and was an inaugural Director on the national board of the Prostate Cancer Foundation of Australia. (Show more)