NSW Prostate Clinical Cancer Registry

Data coverage

The NSW PCCR captures diagnosis, treatment, quality of life and mortality data for men diagnosed with prostate cancer in NSW from 1 January 2015, at participating sites.  

Data sources

Data for the NSW PCCR will be sourced from the NSW Cancer Registry, patients' medical records in participating hospitals, and from the rooms of participating clinicians. Quality of life information is collected directly from men at 12 and 24 months after their diagnosis or treatment for prostate cancer.

Electoral Roll data from the NSW Electoral Commission are provided to the Cancer Institute NSW for the purpose of ensuring the accuracy of records on people diagnosed with cancer.

Data are provided to the Cancer Institute NSW by the Registry of Births, Deaths and Marriages for the purpose of ensuring that deceased people are not contacted.

Data availability

Data collection commenced in January 2016 for men diagnosed from 1 January 2015. Data are expected to be available early 2020.

Data elements

The NSW PCCR collects data including:

  • patient demographics
  • initial diagnosis and staging information
  • clinical examination results
  • treatment details
  • self-reported quality of life measures for participating men.

Download NSW PCCR Data Access Policy.

Data quality

Data quality is assured by:

  • regular checks of completeness of data items
  • investigation of incomplete reporting
  • de-duplication processes
  • training and review of data collection staff and adherence to guidelines by data collection staff.

Data custodian

Data Governance Manager
Cancer Institute NSW
PO Box 41
ALEXANDRIA NSW 1435

All questions relating to this dataset should be directed to:

Email: CINSW-DARenquiries@health.nsw.gov.au​
Phone: 02 8374 3627

Privacy

An individual's right to privacy as established under the Privacy Act 1988 is respected by the NSW Prostate Clinical Cancer Registry (PCCR) and protected. The  NSW PCCR does not allow the publication of information that may identify individuals, or might potentially identify them.

Links to other websites, external to the NSW PCCR, are sometimes included in web pages for convenience of website users, but the NSW PCCR does not have any responsibility for the privacy practices of third party websites linked to the NSW PCCR website.

Is information collected about your website visit?

Visitor logs are used on this website for statistical purposes and administrative purposes only.

Do you want to know more about how your privacy is protected?

As part of the Cancer Institute NSW, the NSW PCCR observes the information privacy principles set out in The Privacy and Personal Information Protection Act 1998 and the Health Information Privacy Act 2002 (both NSW), and the Privacy Act 1988 when collecting and dealing with any personal information.

If you have a general privacy enquiry or complaint regarding the NSW PCCR, please contact:

The Privacy Officer
Cancer Institute NSW
PO Box 41
Alexandria NSW 1435
Ph: (02) 8374 5600
Email: CINSW-Information@health.nsw.gov.au