Agency information guide

The Cancer Institute NSW has published its Agency Information Guide (AIG) in accordance with section 20 of the Government Information (Public Access) Act 2009 (GIPA Act).

On this page you can find information about the functions of the Cancer Institute NSW, how these functions affect the public, how we engage with our stakeholders, the type of information we make publicly available, and the process to request information held by Cancer Institute NSW.


About Cancer Institute NSW

The Cancer Institute NSW is NSW's cancer control agency, established under the Cancer Institute NSW (2003) Act to lessen the impact of cancer across the State.  We work across the health care system to promote better:

We collect and use the latest cancer data, information and evidence to drive improvements in cancer outcomes. We are the largest funder in NSW of cancer research, with a focus on the translation of research findings into clinical practice.

The Cancer Institute NSW manages a number of programs and services, including BreastScreen NSW screening (e.g. mammograms), cancer prevention services (e.g. helping people to quit smoking), and cancer information and research services (e.g. maintaining clinical registries of incidences of cancer in the people of NSW).

We collect and use the latest cancer data, information and evidence to drive improvements in cancer outcomes. We are the largest funder of cancer research in the state, with a focus on the translation of research findings into clinical practice.

Driven by the goals in the NSW Cancer Plan the Cancer Institute works in partnership with all involved in the cancer community to:

  • reduce the incidence of cancer in the community
  • increase the survival rate for people diagnosed with cancer
  • improve the quality of life for people with cancer and their carers
  • provide a source of expertise on cancer control for the government, health service providers, medical researchers and the general community.

The Cancer Institute NSW is led by the Chief Cancer Officer and Chief Executive Officer, Professor David Currow, who is responsible for the Institute's day-to-day running. The Chief Operating Officer and division heads support the Chief Cancer Officer.

The Institute’s organisational structure is comprised of three divisions: Cancer Screening and Prevention; Cancer Services and Information; and Strategic Research Investment. These are supported by Finance & Administration, Human Resources, Information Technology, and Strategic Communications and Public Affairs.

The affairs of the Cancer Institute are governed by the Board. The prime responsibility of the Board is to assure the Minister for Health and Minister for Medical Research of the effectiveness and appropriateness of the Cancer Institute NSW’s activities and financial affairs.


How we engage with the public and our stakeholders

The Cancer Institute NSW works with a broad range of stakeholders to deliver initiatives and programs that reduce the impact of cancer on our community. Our key partners include:

  • The Minister for Health, the Ministry of Health, other Pillar organisations, Shared Services, Statewide Health Services and the Australian Government.
  • Local Health Districts and Specialty Networks.
  • The cancer research community.
  • Primary health care, including general practitioners and practice nurses.
  • Community and consumer organisations.
  • Aboriginal controlled community health organisations.
  • Multicultural health services.

The Community and Consumer Advisory Panel brings together people affected by cancer in NSW to engage in the work of the Cancer Institute NSW.

Aboriginal leadership and engagement are critical to achieving meaningful and lasting improvements in cancer outcomes for Aboriginal people. This is a key step in ensuring that decision making in Aboriginal cancer control activity is culturally safe, appropriate and improves cancer outcomes for Aboriginal people in NSW.


Information held by Cancer Institute NSW

The Cancer Institute NSW manages a number of registries and data collections that provide comprehensive information about cancer in NSW. Further information can be accessed at our cancer-related data pages.

We offer a data request service for access to data and statistics that are not available on Cancer Statistics NSW. This supports governments, researchers, health services and providers, and the community, to improve outcomes and care for people affected by cancer.

The Cancer Institute NSW also provides information on clinical trials programs, including a list of clinical cancer trials that are recruiting or soon to be recruiting in NSW. Further information can be accessed at our cancer clinical trials in NSW page.


How to access information held by Cancer Institute NSW

Open access information

The following open access information must be disclosed on the Cancer Institute NSW website:

  • policy documents that may affect or have an impact on the public
  • a Disclosure Log of Formal Access Applications that may be of interest to the public.
    The Cancer Institute NSW is yet to receive any relevant applications to disclose.
  • a Register of Government Contracts valued at $150,000 or over with the private sector.
  • a record of the open access information (if any) that the agency does not make publicly available on the basis of an overriding public interest against disclosure.
  • information that has been tabled in Parliament by or on behalf of the Cancer Institute NSW.
    There are currently no relevant documents to disclose.

The following additional information is also available:


Proactive release

The Cancer Institute NSW publishes on its website a range of cancer-related data, information about clinical trials programs, grant opportunities, annual Cancer Control in NSW statewide reports, the NSW Cancer Plan, information about cancer prevention, screening and early detection, information on patient diagnosis, treatment and care, information and support resources for people with cancer and their carers, media releases, and additional cancer resources and news, including research summaries.

Informal release of information

You can make a request at any time for other information held by the Cancer Institute NSW. This is known as an informal request. Informal requests can be made by emailing CINSW at

Data requests

If your request is for cancer data and statistics held by CINSW, please go to our cancer data and statistics pages.


Formal access application

Some requests for information may require a formal access application. This should be a last resort and will be necessary if you are asking for a large amount of information, or if providing access would involve extensive search or processing time, or if the information involves the personal or business information about third parties who must be consulted before the information can be released. Applications for formal access to information must be in writing and be accompanied by the application fee of $30.00. Processing charges of $30 per hour may apply.

To make a formal access application, complete the application form and send to:

Right to Information Officer
Cancer Institute NSW
PO Box 41
Alexandria  NSW  1435


Contact Cancer Institute NSW

Our Right to Information Officer can be contacted at:

Post:                            PO Box 41, ALEXANDRIA NSW 1435
Phone                          8374 5600
Business Hours           Monday to Friday 9am to 5pm (excluding public holidays)
Office                           1 Reserve Road, St Leonards NSW 2065