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Research and data

Cancer data, clinical trials, grants and research in NSW

The Cancer Institute NSW manages data registries and funds cancer research in NSW to inform and influence improved cancer outcomes across the state.

Research and data

The Cancer Institute NSW collects and manages a significant amount of data about cancer incidence, outcomes, screening, trends and risk factors.

We use this information, working with our stakeholders, to influence change and make improvements across the cancer health system.

In particular, it enables us to direct funds where they are needed most. We are the largest funder of cancer research in NSW, providing grants, supporting clinical trials and investing in translational cancer research.

This support continues to turn innovative approaches to cancer prevention, diagnosis, treatment and care into improved outcomes for people living with cancer.

In this section

Cancer clinical trials in NSW

Clinical trials in NSW test innovative new treatments and interventions. They are essential for the development of new and improved treatment options for cancer patients.

Cancer statistics NSW

An interactive module providing NSW statistics for cancer incidence, mortality, survival, screening and clinical trials.

Cancer researchers working in NSW

The Cancer Institute NSW supports researchers across NSW – find out what drives their work, and how they are changing the lives of people with cancer.

Grant opportunities

Key dates and information for all open grants offered by the Cancer Institute NSW.

How to apply

Taking part in a clinical trial

Learn how to access & take part in a cancer clinical trial in NSW, including what to ask your doctor & where current trials are running.

Cancer data and statistics

Our cancer registries and data collections provide the most comprehensive information about cancer in NSW.

Cancer type summaries for NSW

Find data and information about how different cancers impact on the people of NSW. Cancer in NSW impacts people living with a cancer diagnosis, caring for a loved one, or searching for a cure.

Research Grant schemes and resources

Research grants are offered by the Cancer Institute NSW to support innovative projects and research enabling us to work collaboratively to lessen the impact of cancer in NSW.

How do clinical trials progress?

Clinical trials go through four phases or stages, each designed to answer a separate research question and improve the prospective treatment.

Submission Deadlines and Meeting Dates 2020

Recruiting cancer trials in NSW

A listing for clinicians and patients to find cancer related clinical trials currently recruiting in NSW. Use the filter to find trials related to cancer type, locations or other factors.

Cancer research

We work with our stakeholders, to influence change and make improvements across the cancer health system.

Previous grants funded

Find out more about grants that have previously been funded by the Cancer Institute NSW.

Translational cancer research

Investing in translational cancer research improves the treatment and support of people affected by cancer through patient-focused research.

Reporting requirements

CanDLe initiative

Enduring Cancer Data Linkage (CanDLe) for health services research in New South Wales is a Cancer Institute NSW initiative that will provide linked unit record cancer data to a network of approved researchers.

Grants

Grants are offered by the Cancer Institute NSW to support innovative projects and research that enable us to work collaboratively to lessen the impact of cancer in NSW.

Grant evaluation

Our clinical trials funding program

Our clinical trials program support the rapid translation of new and innovative therapies into practice for the benefit of people with cancer.

Research governance

Applying for clinical trials funding

Find out how to apply for financial support to conduct cancer clinical trials in NSW.

Publications using our data

Find a listing of cancer related publications that use data held by the Cancer Institute NSW, as well as how you can access this data for research.

Research amendments

NSW Population & Health Services Research Ethics Committee

The NSW Population and Health Services Research Ethics Committee undertakes scientific and ethical review of population health research which utilises or links to routinely collected health (and other) data.

Clinical Trials Portal

Our Clinical Trials Portal is a system that captures, monitors and reports on clinical trial data across NSW. Learn more about the importance of collecting clinical trial data and how to register your trial.

Data governance

Effective data governance ensures the Cancer Institute NSW’s data assets are valued, protected and used to support our work in cancer control.

Policy and links

Committee members

Performance indicators

All of the clinical trials funded by the Institute must include performance indicators which measure how well a trial has performed. Find out more about the requirements for indicators.

View or request summary cancer statistics

Summary statistics, otherwise known as tabulated or aggregate data, are data that relate to multiple people or events.

Ethics FAQ

Request unlinked unit record data for research

Unlinked unit record data refers to individual person-level data that has been sourced from a single dataset.

NSW Prostate Clinical Cancer Registry

The NSW Prostate Clinical Cancer Registry (PCCR) is the NSW arm of the Prostate Cancer Outcomes Registry Australia and New Zealand; a national initiative funded by the Movember® Foundation. It is a population-based clinical registry that aims to improve the health outcomes for men living with prostate cancer.

Contact us

Request linked unit record data for research

Linked unit record data refers to individual person-level data that has been brought together from multiple datasets.

Request data for quality improvement

Local health districts can request data for quality improvement which involves the monitoring and evaluation of health care to improve its delivery.

Request data about my patients

Request a cancer verification to help assess the risk of hereditary cancer for patients and their families.

Request data about me

Information for individuals on how to request or update information about themselves that the Cancer Institute NSW holds in its registries and data collections.

Submit cancer cases to the NSW Cancer Registry

Notification of new cancer cases & cancer deaths is required under the Public Health Act 2010. Learn how to submit cancer cases to the NSW Cancer Registry.

NSW cancer data projections

Projections of cancer incidence provide a valuable indication of the current and near future expected burden on the community.

Data sources, calculations and notes

Information about data sources and calculations used in the Cancer type summaries for NSW pages and the Cancer Statistics NSW module.