Cancer Institute NSW
Cancer data and statistics
The Cancer Institute NSW manages data registries in NSW to inform and influence improved cancer outcomes across the state.
We collect and manage a significant amount of data about cancer incidence and mortality, outcomes, screening, trends and risk factors.
Our cancer registries and data collections provide the most comprehensive information about cancer in NSW.
We use this information, working with our stakeholders, to influence change and make improvements across the cancer health system.
In this section
About NSW Prostate Clinical Cancer Register
Cancer statistics NSW
An interactive module providing NSW statistics for cancer incidence, mortality, survival, screening and clinical trials.
Cancer in Sydney 2018 data projections
2018 cancer incidence projections for bowel cancer, female breast cancer, lung cancer and melanoma for Sydney Local Government Areas.
Cancer Notification Portal
Cancer verifications service
Information for researchers
There will be two Expression of Interest rounds in the initial year, where researchers can apply to be a Lead Researcher on the CanDle initiative.
NSW Cancer Registry
Access and storage of data
The CanDLe initiative data will be stored and accessed in a secure environment. The currently approved environment is SURE.
Cancer type summaries for NSW
Find data and information about how different cancers impact on the people of NSW. Cancer in NSW impacts people living with a cancer diagnosis, caring for a loved one, or searching for a cure.
All cancers statistics
BreastScreen NSW
Electronic Pathology Solutions
The Cancer Institute NSW receives notification of cancer from various sources including hospitals, pathology, laboratories and more.
NSW PCCR Team
Bladder cancer statistics
Clinical Data Collections from Outpatient Oncology Facilities
Find out more information about clinical data collections from outpatient oncology facilities.
For participating men
NSW Clinical Cancer Registry (2008-2012)
CanDLe initiative
Enduring Cancer Data Linkage (CanDLe) for health services research in New South Wales is a Cancer Institute NSW initiative that will provide linked unit record cancer data to a network of approved researchers.
Bowel cancer statistics
Cancer Institute Tobacco Tracking Survey (CITTS)
Ethics and Governance
Learn more about Ethics and Governance relating to the CanDLe initiative.
For clinicians and institutions
Brain cancer statistics
Governance and steering committee
NSW Quitline
Publications using our data
Find a listing of cancer related publications that use data held by the Cancer Institute NSW, as well as how you can access this data for research.
Breast cancer statistics
Data governance
Effective data governance ensures the Cancer Institute NSW’s data assets are valued, protected and used to support our work in cancer control.
NSW Prostate Clinical Cancer Registry
Cancer of unknown primary statistics
NSW and ACT Hereditary Cancer Registry
View or request summary cancer statistics
Summary statistics, otherwise known as tabulated or aggregate data, are data that relate to multiple people or events.
Cervical cancer statistics
Request unlinked unit record data for research
Unlinked unit record data refers to individual person-level data that has been sourced from a single dataset.
NSW Prostate Clinical Cancer Registry
The NSW Prostate Clinical Cancer Registry (PCCR) is the NSW arm of the Prostate Cancer Outcomes Registry Australia and New Zealand; a national initiative funded by the Movember® Foundation. It is a population-based clinical registry that aims to improve the health outcomes for men living with prostate cancer.
Colon cancer statistics
Gallbladder cancer statistics
Request linked unit record data for research
Linked unit record data refers to individual person-level data that has been brought together from multiple datasets.
Head and neck cancer statistics
Request data for quality improvement
Local health districts can request data for quality improvement which involves the monitoring and evaluation of health care to improve its delivery.
Kidney cancer statistics
Request data about my patients
Request a cancer verification to help assess the risk of hereditary cancer for patients and their families.
Leukaemia statistics
Request data about me
Information for individuals on how to request or update information about themselves that the Cancer Institute NSW holds in its registries and data collections.
Lip cancer statistics
Submit cancer cases to the NSW Cancer Registry
Notification of new cancer cases & cancer deaths is required under the Public Health Act 2010. Learn how to submit cancer cases to the NSW Cancer Registry.
Liver cancer statistics
NSW cancer data projections
Projections of cancer incidence provide a valuable indication of the current and near future expected burden on the community.
Data sources, calculations and notes
Information about data sources and calculations used in the Cancer type summaries for NSW pages and the Cancer Statistics NSW module.
