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Cancer data and statistics

The Cancer Institute NSW manages data registries in NSW to inform and influence improved cancer outcomes across the state.

We collect and manage a significant amount of data about cancer incidence and mortality, outcomes, screening, trends and risk factors.

Cancer data and statistics

Our cancer registries and data collections provide the most comprehensive information about cancer in NSW.

We use this information, working with our stakeholders, to influence change and make improvements across the cancer health system.

In this section

About NSW Prostate Clinical Cancer Register

Cancer statistics NSW

An interactive module providing NSW statistics for cancer incidence, mortality, survival, screening and clinical trials.

Cancer in Sydney 2018 data projections

2018 cancer incidence projections for bowel cancer, female breast cancer, lung cancer and melanoma for Sydney Local Government Areas.

Cancer Notification Portal

Cancer verifications service

Information for researchers

There will be two Expression of Interest rounds in the initial year, where researchers can apply to be a Lead Researcher on the CanDle initiative.

NSW Cancer Registry

Access and storage of data

The CanDLe initiative data will be stored and accessed in a secure environment. The currently approved environment is SURE.

Cancer type summaries for NSW

Find data and information about how different cancers impact on the people of NSW. Cancer in NSW impacts people living with a cancer diagnosis, caring for a loved one, or searching for a cure.

All cancers statistics

BreastScreen NSW

Electronic Pathology Solutions

The Cancer Institute NSW receives notification of cancer from various sources including hospitals, pathology, laboratories and more.

NSW PCCR Team

Bladder cancer statistics

Clinical Data Collections from Outpatient Oncology Facilities

Find out more information about clinical data collections from outpatient oncology facilities.

For participating men

NSW Clinical Cancer Registry (2008-2012)

CanDLe initiative

Enduring Cancer Data Linkage (CanDLe) for health services research in New South Wales is a Cancer Institute NSW initiative that will provide linked unit record cancer data to a network of approved researchers.

Bowel cancer statistics

Cancer Institute Tobacco Tracking Survey (CITTS)

Ethics and Governance

Learn more about Ethics and Governance relating to the CanDLe initiative.

For clinicians and institutions

Brain cancer statistics

Governance and steering committee

NSW Quitline

Publications using our data

Find a listing of cancer related publications that use data held by the Cancer Institute NSW, as well as how you can access this data for research.

Breast cancer statistics

Data governance

Effective data governance ensures the Cancer Institute NSW’s data assets are valued, protected and used to support our work in cancer control.

NSW Prostate Clinical Cancer Registry

Cancer of unknown primary statistics

NSW and ACT Hereditary Cancer Registry

View or request summary cancer statistics

Summary statistics, otherwise known as tabulated or aggregate data, are data that relate to multiple people or events.

Cervical cancer statistics

Request unlinked unit record data for research

Unlinked unit record data refers to individual person-level data that has been sourced from a single dataset.

NSW Prostate Clinical Cancer Registry

The NSW Prostate Clinical Cancer Registry (PCCR) is the NSW arm of the Prostate Cancer Outcomes Registry Australia and New Zealand; a national initiative funded by the Movember® Foundation. It is a population-based clinical registry that aims to improve the health outcomes for men living with prostate cancer.

Colon cancer statistics

Gallbladder cancer statistics

Request linked unit record data for research

Linked unit record data refers to individual person-level data that has been brought together from multiple datasets.

Head and neck cancer statistics

Request data for quality improvement

Local health districts can request data for quality improvement which involves the monitoring and evaluation of health care to improve its delivery.

Kidney cancer statistics

Request data about my patients

Request a cancer verification to help assess the risk of hereditary cancer for patients and their families.

Leukaemia statistics

Request data about me

Information for individuals on how to request or update information about themselves that the Cancer Institute NSW holds in its registries and data collections.

Lip cancer statistics

Submit cancer cases to the NSW Cancer Registry

Notification of new cancer cases & cancer deaths is required under the Public Health Act 2010. Learn how to submit cancer cases to the NSW Cancer Registry.

Liver cancer statistics

NSW cancer data projections

Projections of cancer incidence provide a valuable indication of the current and near future expected burden on the community.

Data sources, calculations and notes

Information about data sources and calculations used in the Cancer type summaries for NSW pages and the Cancer Statistics NSW module.

Lung cancer statistics

Melanoma statistics

Mesothelioma statistics

Multiple myeloma statistics

Myelodysplasia statistics

Non-Hodgkin lymphoma statistics

Oesophageal cancer statistics

Ovarian cancer statistics

Pancreatic cancer statistics

Prostate cancer statistics

Rectal cancer statistics

Stomach cancer statistics

Testicular cancer statistics

Thyroid cancer statistics

Uterine cancer statistics