Cancer Institute NSW
Cancer data and statistics
The Cancer Institute NSW manages data registries in NSW to inform and influence improved cancer outcomes across the state.
We collect and manage a significant amount of data about cancer incidence and mortality, outcomes, screening, trends and risk factors.
Our cancer registries and data collections provide the most comprehensive information about cancer in NSW.
We use this information, working with our stakeholders, to influence change and make improvements across the cancer health system.
In this section
Cancer statistics NSW
An interactive module providing NSW statistics for cancer incidence, mortality, survival, screening and clinical trials.
Cancer type summaries for NSW
Find data and information about how different cancers impact on the people of NSW. Cancer in NSW impacts people living with a cancer diagnosis, caring for a loved one, or searching for a cure.
CanDLe program
Learn more about this initiative that will provide linked unit record cancer data to a network of approved researchers.
Publications using our data
Find a listing of cancer related publications that use data held by the Cancer Institute NSW, as well as how you can access this data for research.
Data governance
Effective data governance ensures the Cancer Institute NSW’s data assets are valued, protected and used to support our work in cancer control.
View or request summary cancer statistics
Summary statistics, otherwise known as tabulated or aggregate data, are data that relate to multiple people or events.
Request unlinked unit record data for research
Unlinked unit record data refers to individual person-level data that has been sourced from a single dataset.
NSW Prostate Clinical Cancer Registry
The NSW Prostate Clinical Cancer Registry (PCCR) is the NSW arm of the Prostate Cancer Outcomes Registry Australia and New Zealand; a national initiative funded by the Movember® Foundation. It is a population-based clinical registry that aims to improve the health outcomes for men living with prostate cancer.
Request linked unit record data for research
Linked unit record data refers to individual person-level data that has been brought together from multiple datasets.
Request data for quality improvement
Local health districts can request data for quality improvement which involves the monitoring and evaluation of health care to improve its delivery.
Request data about my patients
Request a cancer verification to help assess the risk of hereditary cancer for patients and their families.
Request data about me
Information for individuals on how to request or update information about themselves that the Cancer Institute NSW holds in its registries and data collections.
Submit cancer cases to the NSW Cancer Registry
Notification of new cancer cases & cancer deaths is required under the Public Health Act 2010. Learn how to submit cancer cases to the NSW Cancer Registry.
Data sources, calculations and notes
Information about data sources and calculations used in the Cancer type summaries for NSW pages and the Cancer Statistics NSW module.
