For clinicians and institutions
Clinician and Institution Participation
The NSW PCCR is a state based registry and will seek participation of all NSW Local Health Districts public hospitals, as well as private hospitals and clinicians operating in private consulting rooms.
In order for a complete and accurate profile of care provided to men with prostate cancer it is imperative that population-based data be collected. This means that every patient treated by every doctor in NSW will have the capacity to contribute to the Registry.
What does participation involve?
Participation by clinicians and institutions:
- assisting with the identification of men living with prostate cancer
- allowing the PCCR to contact patients to invite them to participate
- working with PCCR staff to arrange a convenient time to collect data on men who have not opted out or for whom the PCCR has a waiver of consent
- providing a clinical stage to the PCCR if it is not recorded in your patient's medical record
Participation is voluntary; however, the more institutions and clinicians that support the PCCR, the more effective it will be at ensuring the best possible health service to men with prostate cancer in NSW
Benefits of Participation
The data from the NSW PCCR has many significant impacts in research, development, and education and will provide the following benefits:
- Provide a cross-sectional view of multiple clinical and demographic aspects of prostate cancer that may be studied in detail using targeted, prospective study design or using health statistics.
- Identify whether clinicians are managing the disease in accordance with the principles of evidence-based practice.
- Collect up-to-date information about patterns of care and enables oversight of changing patterns of disease demographic and management.
- Enable clinicians to compare their own patient population and therapeutic management with that of other clinicians (NB. No clinician identifying information will be released by the NSW PCCR).
- May be used to assist in the design of clinical trials, including identifying questions for study.
- Provide clinicians and institutions with mortality and morbidity data associated with various risk and treatment groups, both for their own patients and the wider cohort of men with prostate cancer.
- May be used as an educational tool for clinicians and students.
Measuring quality of care
Quality of care can be assessed by reviewing structures, processes and outcome of care.
The NSW PCCR will collect clinical indicators that best reflect best practice guidelines and outcomes of care, such as:
- volume of patients according to treatment type at individual institutions
- surgical outcomes
- management of metastatic disease
- patient centered structures within institutions
- availability of services/treatments to patients
- adherence to evidence based guidelines for diagnosis and treatment
- completeness and availability of clinical documentation
- patient outcomes
- patient reported outcomes
The following sites (in alphabetical order) are currently contributing data to the NSW PCCR:
- Armidale Hospital
- Bankstown-Lidcombe Hospital
- Bathurst Base Hospital
- Belmont Hospital
- Blacktown Hospital
- Calvary Mater Hospital
- Campbelltown Hospital
- Chris O’Brien Lifehouse
- Cobar District Hospital
- Coffs Harbour Health Campus
- Coonabarabran District Hospital
- Dubbo Hospital (View all sites)
Additional sites will be added over the next 2 years. If you are a clinician or facility that has not yet been approached but would like to participate in the initiative, please contact us.
- Dr Diana Adams
- Dr Nariman Ahmadi
- Dr Gias Ahmed
- Dr Paul Ainsworth
- Dr Mohan Arianayagam
- Dr Nader Awad
- Dr Bavanth Balakrishnar
- Dr Simon Bariol
- Dr Philip Bergersen
- A/Prof Martin Berry
- A/Prof Andrew Brooks
- Dr David J G Brown
- Dr Joseph Bucci
- Dr Alistair Cameron-Strange
- Dr Venu Chalasani
- Dr Matthew Chan
- Dr Christopher Chee (View all clinicians)
Frequently Asked Questions by Clinicians and Institutions
This page will be updated on a regular basis. If your specific question is not answered below, please contact us.