NSW Cancer Registry

The NSW Cancer Registry (NSWCR) maintains records of people with cancer in NSW. The data captured within the registry provides useful insights into the impact of cancers, and how this has changed over time. Notification of new cancer cases and cancer deaths is required under the Public Health Act 2010.

The NSWCR is the first Australian population-based cancer registry to include data on cancer stage, treatment and quality of care. Treatment delivered in the majority of hospitals in the public sector is covered, with data from the remaining public hospitals and the private sector being included in the future.

Further expansion of the NSWCR to include a broader range of data items is planned.

Data coverage

The NSWCR contains demographic, incidence and death details for people diagnosed with cancer in NSW since 1972. It also includes these details for residents of NSW diagnosed with cancer in other Australian states and territories.

All primary malignant neoplasms, and in-situ melanoma and breast cancer are included.

The NSWCR contains clinical data relating to episodes of care for people treated for cancer in NSW. Clinical data are currently available for 2013, with additional data to be added as they become available. The NSWCR does not currently have population coverage of clinical data. 

Clinical data relating to episodes of care from 2008 to 2012 are available in the NSW Clinical Cancer Registry (2008–2012).

Data sources

Data are received from pathology laboratories, hospitals, radiotherapy and medical oncology departments, aged care facilities and the Registry of Births, Deaths and Marriages.

Electoral Roll data from the NSW Electoral Commission are provided to the Cancer Institute NSW for the purpose of ensuring the accuracy of records on people diagnosed with cancer.

Data submission

The Cancer Notification Portal enables the submission of notifications of cancer cases and clinical information to be provided to the Institute in an electronic format, by Private facilities, Aged Care Facilities and Outpatient Oncology Services.

Data availability

Incidence and mortality data:
A dataset is produced for each year, as soon as data collection and processing of all cancer cases and deaths is completed.

Incidence and mortality data are available for the following periods on request:
Most recent year: 2017
Next release: 2018 preliminary incidence (due first half 2021)
Historical series: 1972–2017

Clinical data:
Clinical data will be updated depending on data availability.  Notification of additional data releases will be posted on our website.

Clinical data are available for the following periods on request:
Most recent year: 2013

To request data, see our cancer data and statistics page.

To view incidence and mortality data, visit our statistics portal.

Data elements

Data items included in the NSWCR are provided in the NSWCR data dictionary.

Please be aware of the following changes in relation to the release of data: 

For further information about the clinical data items, please contact CINSW-DARenquiries@health.nsw.gov.au.

If a full systems data dictionary is required for extract or development work, please contact CINSW-CCR@health.nsw.gov.au.

Data quality

Incidence and mortality data:
Routine data quality control measures include:

Information about quality caveats for incidence and mortality data are available at:
Caveat on Use of Data Item - Place of Death (PDF)
Caveat on Use of Data Item - Degree of Spread (PDF)
Caveat of Use of Data Item - Day of Diagnosis (PDF)

Clinical data:
All researchers requesting clinical data items should contact CINSW-DARenquiries@health.nsw.gov.au.

Please note that population coverage of clinical data is not available at this time. The NSWCR is working to increase the coverage and quality of clinical data items. 

We encourage researchers to provide feedback about the clinical data to CINSW-DARenquiries@health.nsw.gov.au. Feedback will be used to better understand and inform the use of the clinical data.

Data custodian

Data Governance Manager
Cancer Institute NSW
PO Box 41

All questions relating to this dataset should be directed to:
Email: CINSW-DARenquiries@health.nsw.gov.au
Phone: 02 8374 5600